Owned and operated by a dual military couple, Bailey’s Child Development and Learning Center started when the Bailey’s were facing difficulties finding reliable childcare while on active duty. Knowing they could not possibly be the only active military family dealing with this issue, the couple opened an at home childcare facility in 2013. Very quickly, three enrolled kids increased to 12 kids and the demand continued to grow, forcing Bailey’s CDC to implement a waiting list for other families who needed these services.

Bailey’s CDC provides curriculum to students in addition to training sessions for parents who need education support or information on childcare. Bailey’s CDC also provides jobs within the local community, expanding benefits and impact beyond the facility.

The Baileys identified this growing need for trustworthy and reputable childcare and were committed to providing this service. However, with no expertise in starting and running a small business, all of this was very new. They had to look for organizations that could provide them with all the knowledge and resources to properly operate and continue to grow the learning center.

Raphaela Bailey, part owner of Bailey’s CDC understands the fear and discomfort parents feel when placing their children in childcare. Raphaela understands the parents they service because she has been in their shoes. She recalls her time on active sea duty and how terrified she was to leave her babies. She has compassion for the parents leaving their kids in childcare and wants to create a safe environment where parents feel confident leaving their children.

With the demand for Bailey’s CDC increasing, the couple looked for ways to attract new employees while caring for their current staff. Through programs like the Shared Service Alliance, United Way, and Alamo Workforce, Bailey’s CDC was able to better understand the needs of the community.

As a recipient of a FedEx Small Business Grant, Bailey’s CDC can concentrate on efforts to invest more time in growing their business. The Baileys shared they plan to “take the center to the next level and become a Texas Rising Star-certified program,” a program that will help provide healthcare for teachers at the center.

With the grant funds, Bailey’s CDC will continue providing a much-needed space for children to learn and grow, parents to learn, and further engage local community members. Bailey’s CDC desires to contribute to their local economy and successfully set up the leaders of tomorrow for brighter futures.

Visit FedExCares.com for additional feature stories about the other 2024 Hiring Our Heroes Small Business Grant Program winners in the coming weeks.

Click here to learn about FedEx Cares, our global community engagement program.

By Sarah Hewitt, Director Strive Women, Women’s Entrepreneurship at CARE

In the corner of a vegetarian restaurant in Hanoi’s Old Quarter, three Vietnamese women sit around bowls of steaming noodles and dumplings, engrossed in discussion.

Despite the noise and chaos of the traffic outside, it’s peaceful in this small and cozy restaurant filled with potted plants. Sounds of conversation and laughter grow as the restaurant fills up with the lunch crowd.

The handmade menu tells the owner’s story. She opened the restaurant during the COVID-19 pandemic with a desire to provide healthy, nourishing meals made from local ingredients. Like any small business, this owner would face multiple challenges and fierce competition (as she later tells me), but now, the restaurant is clearly thriving, and I wonder, what is the recipe for her success? What draws all these customers and me, a foreigner in Vietnam, time and again to this restaurant instead of the more familiar big chain names?

Is it just the papaya salad – really, the best I’ve ever eaten – or is it something else that only a small business has?

Building stronger communities

Around the world, small businesses are the hearts and souls of communities. Your local barber and corner stores offer more than just transactional interactions for essential products and services. They are places where people listen to your everyday problems and foster a sense of belonging. What’s more, there’s a one in three chance that these micro, small and medium-sized enterprises (MSMEs), like the one I’m lunching in today, will be led by women.

There are more women than ever in business today, yet most have only three-quarters of the legal rights that men have when it comes to career, finances, and work-life balance – this despite the fact that women-led businesses are vital not just for their reinvestment into household incomes and national economies, but also for their transformative power. The latest evidence on women-led businesses finds that they not only reduce poverty but that they also drive job creation, spark innovation, and contribute to safer, greener and more vibrant communities, ensuring that everyone thrives collectively. These women-led enterprises are regenerative forces – building business communities and hiring local workers. Local economies simply cannot succeed without them.

Dreaming inclusive growth into reality

“Women on their own face many obstacles. However, if we build a community of people who inspire us and support us, we can achieve so much…. We can do things together that we could never accomplish alone,” says Violeta Pacheco Mejía an entrepreneur in Lima, Peru.

Her eco-friendly alpaca and cotton clothing company, Tejidos Peruanos, is based in Villa El Salvador, a historically disadvantaged neighborhood in Lima.  Her business has a reputation for being a place where women help women succeed and where community makes the impossible possible. Violeta set up her company in Villa El Salvador to make it more accessible to talented workers living in the area. In addition to having a largely female work staff, Tejidos Peruanos offers safe on-site childcare for employees, to give parents flexibility and peace of mind. Tejidos Peruanos and Violeta are prime examples of how women entrepreneurs reinvest in their communities, hire more women, and give hope to other marginalized populations.

It has taken Violeta over 18 years of hard work and passion to create the business of her dreams — impactful and profitable. Yet it was only in this last year that Violeta, through her participation in CARE’s Ignite and Strive Women programs – both supported by the Mastercard Center for Inclusive Growth – was finally able to get a bank loan in her own name.

“Tejidos Peruanos is the dream of 14 women,” says Violeta, “We have gone through many difficulties, but we have been able to move forward despite them. We have realized at this point that if we want to keep moving forward, we must keep preparing and training – not just me, but the whole team. This is a dream that we dream together.”

Enabling healthy market systems, while battling systemic barriers

Despite the creativity, resilience, and leadership demonstrated by Violeta and millions like her, women entrepreneurs face outsized barriers and constraints – including access to credit – that impede their growth and deteriorate their confidence.

The women entrepreneurs we work with through CARE’s programs are not willing to wait. They want to grow their businesses and they have the skills and confidence to do it. Our recipe for building a supportive ecosystem – one that values the contributions of women – works with local partners to design policies, products, and programs. Together we design tailored financial services, alongside training and business networks, with outreach campaigns to challenge harmful gender norms.

Policymakers, businesses, banks, community leaders, and individuals have a role to play in unlocking women’s economic power, valued at $10 trillion annually. We need whole system change that includes comprehensive macroeconomic reforms including fairer tax systems and recognition of the care economy. We need localized women-centered financial products and entrepreneur support systems to create more equitable economies for all marginalized groups, including women.

As we commemorate MSME Day let us recognize, celebrate, and promote the women-led micro and small enterprises that are the lifeblood of our communities. Here’s how you can show your support and make an impact:

By supporting the growth and resilience of women-led small businesses, we strengthen the invisible bonds that connect us. This not only helps unique and vibrant places thrive, like the Vietnamese noodle café in Hanoi, but also moves us towards a feminist future where equality and inclusivity become a lived reality.

As energy transition continues to take hold globally, the oil and gas industry stands in a central position of influence.

On one hand, these fuels are major contributors to carbon emissions. On the other hand, oil and gas companies have unique expertise, resources, and incentives to take a leading role in the shift toward more sustainable energy systems.

In what has been described as a “moment of truth” for the industry, it’s critical for business leaders to be aware and vigilant of the risks and opportunities presented by a global movement toward cleaner energy.

What does energy transition mean for oil and gas?

Oil and gas aren’t going away anytime soon. While research from the International Energy Agency (IEA) has suggested that global demand for these energy sources could peak by 2030, McKinsey asserts that “fossil fuels such as oil and natural gas will continue to make up a significant share of the energy mix by 2050, partly because of how they combine affordability and security of supply.”

With that said, there are clear market risks associated with the decreasing demand for petroleum-based products, along with policy/legal risks, technology risks, and reputational risks faced by companies in this space.

Understanding oil and gas transition risks and opportunities

At Antea Group, we are deeply focused on helping companies navigate the novel challenges of an evolving global energy infrastructure. Using the profile of an upstream oil and gas company in the United States, here’s an overview of transition-related risks as defined by the Task Force on Climate-Related Financial Disclosures (TCFD), highlighting some of the latest legislative and regulatory action.

Policy and legal risks

The most apparent and forthcoming policy risk, impacting all businesses, is the recent SEC ruling requiring disclosure of GHG emissions data. That policy and others like it can impose compliance burdens on oil and gas companies and may increase the level of scrutiny on public reporting. Oil and gas companies should also be aware of the following examples of local and national pricing schemes:

A national carbon tax, while unlikely in the short term, will significantly increase compliance costs, especially impacting heavy industries like power production and manufacturing earlier.The American Petroleum Institute (API) has supported the idea of a national carbon price but there is no consensus on implementation details.The Regional Greenhouse Gas Initiative (RGGI) is a cooperative effort among 12 eastern states aimed at reducing CO2 emissions from power plants. It employs a market-based system where regulated power plants must acquire CO2 allowances priced at $2.50 per short ton of emissions.

Additionally, it’s important to be aware of these changes in access to leases and production costs:

One climate-related action from the Biden administration was slowing the release of federal leases, increasing exploration and production costs. Higher royalty rates and the rescindment of non-competitive leases are adding to the financial burden.New reclamation policies for abandoned wells and stricter regulations on methane venting and flaring can further increase production costs.

There is also an anticipated decrease in overall domestic demand for oil and gas as clean power targets from the government take shape. An executive order for the U.S. in December of 2021 established the following goals:

100% carbon-free electricity by 2030, with half being locally supplied clean energy.100% zero-emission vehicle acquisitions by 2035.Net-zero emissions building portfolio by 2045, including a 50% reduction by 2032.

Since 2018, 19 states have increased the ambition of their renewable or clean energy targets.

Technology and market risks

The adoption of electric vehicles and emission standards is having a substantial impact on the oil and gas industry, and demand for fossil fuels. For example:

Emissions standards set by the California Air Resources Board (CARB) have been adopted in 17 states, including California and Washington D.C. These states are also committed to zero emission vehicle (ZEV) targets.The Environmental Protection Agency (EPA) has introduced the most stringent emissions standards to date for heavy-duty vehicles, further reducing fossil fuel demand.

From a market standpoint, technologies such as renewables (solar and wind), electric vehicles, and battery storage are achieving cost parity with traditional fossil fuels more quickly than anticipated. This makes them more competitive and attractive alternatives.

Meanwhile, carbon capture technology is being developed, with support from investments in the oil and gas sector. Despite the ongoing effort, carbon capture has not yet proven to be cost-effective or scalable, posing a significant risk to its viability as a long-term solution for reducing emissions.

Reputational risks

Understandably, oil and gas companies have become a prime target of climate activism, due to perceptions around being a core part of the problem. Public criticism of new exploration projects and oil and gas operations generally are growing more common – divestment campaigns being one example.

Increasing regulatory pressure and continued stakeholder expectations to disclose environmental and social impacts are presenting increased costs associated with business operations.

Overprepare to avoid being overwhelmed

Oil and gas companies have a lot on their radars right now, in an industry brimming with both excitement and uncertainty. Understanding the evolving regulatory landscape and the various risks at play in connection with energy transition is crucial to effectively guiding your business into the future.

Antea Group is here to help. Learn about our energy transition consulting services.

Verizon

What you need to know:

Verizon Business and Monarch Tractor have joined together to support more sustainable farming practices through the use of Verizon’s network connectivity.Monarch’s autonomous tractors stay connected even in remote agricultural areas, leveraging the power of Verizon’s award-winning wireless networks.Monarch Tractor’s Monarch MK-V platform, integrated with Verizon’s technology, enables autonomous operations, near real-time visibility, and alerts for farmers.

NEW YORK, July 11, 2024 /3BL/ – Verizon Business and Monarch Tractor, the pioneering force behind the MK-V, the world’s first fully electric, autonomous, smart tractor, announce a strategic partnership to support more sustainable farming practices with the use of autonomous tractors all connected via Verizon’s network.

By harnessing Verizon’s technology, Monarch Tractor enables its autonomous tractors to be connected even in remote agricultural landscapes. Unlike traditional broadband solutions, Verizon provides game-changing technology that connects homes and businesses seamlessly. This connectivity is ideal for remote locations and well suited for the vineyards and farmlands served by Monarch Tractor.

“Monarch Tractor is an example of what happens when an innovative customer leverages our class network and shows the power and versatility of our wireless network,” said Aparna Khurjekar, Chief Revenue Officer, Verizon Business. “By providing connectivity to their autonomous tractors, we are enabling Monarch Tractor’s mission to redefine an industry, bringing greater data-driven decision-making to the agricultural sector.”

The Verizon Business and Monarch Tractor Partnership

Innovation is at the heart of the partnership between Verizon Business and Monarch Tractor, which is investigating the deployment of additional Verizon Business solutions tailored to the agricultural sector. These include capabilities such as the wireless network performance tool and GPS location services.

The deal between Verizon Business and Monarch Tractor underscores the transformative potential of technology in promoting sustainable agriculture by driving innovation, connectivity, and efficiency in farming practices, paving the way for a more resilient and prosperous future for farmers and communities worldwide.

Monarch MK-V Technology

Headquartered in Livermore, California, a renowned agricultural hub, Monarch Tractor’s farmer-centric approach to innovation aligns with Verizon Business’s commitment to advancing technological solutions for businesses across diverse sectors, marking this as a pivotal moment in the agricultural industry. This effort is driven heavily by the Monarch MK-V platform.

The Monarch MK-V combines electrification, machine learning, and data analysis to enhance operations by driving labor productivity, increased safety, and significant cost savings. Monarch Tractor customers can harness the true power of the MK-V with the Wingspan Ag Intelligence (WingspanAI) platform, which provides automated operations planning, remote fleet management, tractor performance reports, maintenance diagnostics, and more. Harnessing Verizon’s technology in the MK-V enables the execution of autonomous operations via the WingspanAI app and deeper visibility into MK-V operations through live video feeds and near real-time alerts from virtually anywhere, at any time.

Monarch Tractor, through its work with Verizon Business, is leveraging connectivity in this real-world use case, highlighting how the Verizon network helps meet the demand for access to high-speed, reliable internet, in virtually any location or industry.

“The premise of Monarch Tractor has been centered around delivering farm machinery that drives farmer profitability and planet sustainability at scale,” said Praveen Penmetsa, CEO and Co-Founder of Monarch Tractor. “Leveraging Verizon’s connectivity solutions has been integral to making the MK-V tractor’s smart, sustainable technology accessible to customers in remote farming communities, allowing us to bring the latest in electrification and autonomy into the hands of farmers across the country.”

Learn more about Monarch Tractor and the MK-V platform.

Learn more about innovative business solutions from Verizon Business.

Media contact

Tessa Giammona
tessa.giammona@verizon.com

By Wayne Thompson

A Regions financial benefit for associates helped Consumer Risk Data Scientist Victoria Robinson fulfill her homeownership dreams and create a new legacy as her family’s youngest homeowner.

In addition to a 1-percent discount off mortgage points or closing costs, Robinson took advantage of one of Regions’ many other financial well-being programs and resources — the 5 for 5 loan program from Regions Mortgage — to chart her own personalized path to financial health.

The forgivable, $5,000 interest-free second mortgage loan is reducing her loan balance.

“The Regions Mortgage 5 for 5 program is a great benefit,” said Robinson, who joined Regions in 2023. “It, and the USDA loan my Regions Mortgage Loan Officer found for me, made the down payment so low and affordable that homeownership did not feel like a financial burden.

“I knew it was something that fit my budget, and am so excited,” she said. “I’m moving from my apartment soon into a pretty new two-bedroom, two-bath townhouse in McCalla. What makes it extra special for me is that I’m 27 and no one in my family ever owned a home at my age. They did not believe it was achievable.”

For every year associates stay with Regions after mortgage closing, $1,000 of the 5 for 5 loan is forgiven, up to a total of $5,000.

Qualifying criteria include being an associate in good standing for at least six months before applying, having a total annual Regions qualifying income of $100,000 or less, and total qualifying household income of $200,000 or less.

In addition to Robinson, the Regions Mortgage 5 for 5 loan program is helping other associates become homeowners too.

Robinson began her home search in January – hoping to get ahead of summer relocation-driven sales, possible future rate moves in the current environment, and quick sales from the limited supply of homes for sale versus demand.

“I found a place in a great neighborhood that I liked and that was close to work and Target, my favorite store,” she said. “My apartment lease wasn’t up until the summer but I knew if I had waited until now, it would have been gone and off the market so I applied and closed in April.”

“The USDA loan was a great fit for Victoria and what she was wanting to do,” said Matt Bearden, a 30-year mortgage industry veteran and the Regions Mortgage Loan Officer who arranged the financing.

“Two things in particular Victoria did that are great examples for anyone looking to buy a home: provide all the documents we need for underwriting as soon as we request them and, before you start home shopping, visit our Regions Next Step® Homeownership Resource Center to learn as much about the home loan process as you can before applying.”

Matt Bearden, Regions Mortgage Loan Officer

Robinson said the pre-education helped her know what questions to ask and what Bearden would need. “That was one of the best decisions I made,” she said. “The whole process could not have been smoother.”

In advance of the official move, Robinson has already taken advantage of her favorite feature of her townhouse – the large yard. “I’m a plant person and have already planted a peach tree.”

It seems her homeownership dreams have taken root in more ways than one.

“My new home is an investment in myself and a confidence builder,” Robinson said. “Now I’m part of the American dream, and that feels so good.”

Funds help nonprofit partners provide disaster relief and assistance with rebuilding and recovery

THE WOODLANDS, Texas, July 11, 2024 /3BL/ – Entergy Texas is pleased to announce a shareholder commitment of $125,000 to the American Red Cross to help support relief efforts for those affected by Hurricane Beryl in Southeast Texas. This contribution will help facilitate the provision of essential services such as shelter, food, medical care and other vital resources to assist those affected by the hurricane in their recovery process.

Hurricane Beryl’s impact has been substantial, leading to widespread damage and displacing many individuals in the area and across the state. The level of damage brought by the Category 1 hurricane underscores the urgent need for assistance and resources to aid those grappling from the storm’s impact.

Eliecer Viamontes, president and CEO of Entergy Texas, expressed the company’s dedication to providing assistance during this time of need, stating, “Entergy Texas is proud to stand alongside the Red Cross in supporting the relief efforts for those impacted by Hurricane Beryl in Southeast Texas. Our commitment to helping communities in distress remains unwavering, and we are hopeful that our contribution will offer relief and comfort to those facing hardships in the storm’s aftermath.”

For more information on Entergy Texas’ restoration following Hurricane Beryl, visit the company’s online Storm Center.

About Entergy Texas

Entergy Texas, Inc. provides electricity to approximately 512,000 customers in 27 counties. Entergy Texas is a subsidiary of Entergy Corporation, a Fortune 500 electric company. Entergy powers life for 3 million customers through our operating companies in Arkansas, Louisiana, Mississippi and Texas. We’re investing in the reliability and resilience of the energy system while helping our region transition to cleaner, more efficient energy solutions. With roots in our communities for more than 100 years, Entergy is a nationally recognized leader in sustainability and corporate citizenship. Since 2018, we have delivered more than $100 million in economic benefits each year to local communities through philanthropy, volunteerism and advocacy. Entergy is headquartered in New Orleans, Louisiana, and has approximately 12,000 employees. For the latest news from Entergy Texas, visit the Newsroom and connect with @EntergyTX on social media.

The latest Bovaer® (3-NOP) announcement comes at a critical time to meet consumer demand for more sustainable foods. Research shows feeding one tablespoon of Bovaer per lactating dairy cow per day can reduce methane emissions about 30% or approximately 1.2 metric tons of carbon dioxide equivalent (CO2e) emissions annually.¹ Feeding a million cows Bovaer is equivalent to removing 285,000 cars off the road for a year.² Reducing methane reduces the rate of climate warming. 

1. Kebreab, E., Bannink, A., Pressman, E. M., Walker, N., Karagiannis, A., van Gastelen, S., & Dijkstra, J. (2023). A meta-analysis of effects of 3-nitrooxypropanol on methane production, yield, and intensity in dairy cattle. Journal of Dairy Science, 106(2), 927–936.https://bit.ly/3UTcr1W based on 60 ppm, 25 kg/d DMI, 30% NDF, and 305 day lactation results in a 31.6% or 1.2 MT reduction
2. Greenhouse Gas Equivalencies Calculator | US EPA

Originally published in GoDaddy’s 2023 Sustainability Report

Frameworks and Metrics

United Nations Sustainable Development Goals (SDGs)

GoDaddy is a member of the United Nations Global Compact and is committed to supporting its Ten Principles and to reporting our progress toward the SDGs annually. We are proud of the progress we made toward the six SDGs where we believe our company has the greatest opportunity for impact. We’ve detailed this progress below.

SDG 5: Gender Equality Achieve gender equality and empower all women and girls.

Our culture of diversity, equity, inclusion, and belonging (DEIB) is core to our business. GoDaddy was among the first companies to announce and publish our pay parity results, and we’re proud to achieve gender pay parity (globally) for the ninth year in a row and ethnicity pay parity (in the U.S.) for the seventh year in a row.14 We disclose detailed information on our gender diversity progress in our annual Sustainability Report. 
 

SDG 7: Affordable and Clean Energy Ensure access to affordable, reliable, sustainable, and modern energy for all.

SDG 9: Industry, Innovation, and Infrastructure Build resilient infrastructure, promote inclusive and sustainable industrialization, and foster innovation.

We believe that GoDaddy’s products and services enable digital microbusinesses to thrive, thereby supporting local and regional economic growth globally. We aim to operate our data centers that fuel our products and services as sustainably as possible by streamlining and consolidating operations to reduce our overall energy usage. We also procure renewable energy, where possible, to cover our data center operations. Since 2019, our EMEA data centers used 100% renewable energy through purchasing Guarantees of Origin. In 2023, our Phoenix data center was also covered by 100% renewable energy from renewable energy credits. 
 

SDG 8: Decent Work and Economic Growth Promote sustained, inclusive, and sustainable economic growth, full and productive employment, and decent work for all. 

SDG 10: Reduced Inequalities Reduce inequality within and among countries.

We believe that inclusive entrepreneurship helps fuel local economies globally, increases generational wealth, decreases wealth gaps, and ultimately improves lives. We work to serve diverse entrepreneurs no matter their age, race, gender, sexual orientation, socioeconomic background, location, or other experience, or identity. Through Empower by GoDaddy, our signature social impact program, we help underserved small and micro-business owners grow their businesses online and in-person. We served nearly 2,900 entrepreneurs in communities across the U.S., Canada, Germany, and the U.K. through 250 workshops and more than 1,450 one-on-one mentorship sessions. 
 

SDG 16: Peace, Justice, and Strong Institutions Promote peaceful and inclusive societies for sustainable development, provide access to justice for all, and build effective, accountable, and inclusive institutions at all levels.

Our corporate governance framework lays the foundation for effective oversight and management accountability. Our commitment to conducting business with honesty and integrity is captured in our Code of Business Conduct and Ethics, which goes hand in hand with our DTRT trainings. We also offer an Ethics Helpline where anyone can report any violations of company policies, our Code, or the law. GoDaddy takes an unsparing stance when it comes to hosting Child Sexual Abuse Material (CSAM). We do not allow content that sexually exploits or endangers minors. To help protect children, we use several tools and systems to prevent or rapidly detect and remove illegal CSAM from our platforms. GoDaddy is a member of the Tech Coalition, a collaborative effort among industry leaders to prevent and eradicate online child sexual exploitation and abuse. Additional information on our response to online CSAM can be found on our GoDaddy Engineering Blog.

To learn more, read our 2023 Sustainability Report.

###

About this Report 

The GoDaddy 2023 Sustainability Report details our progress toward our corporate sustainability goals, strategies, and initiatives in support of our overarching corporate mission and values. Unless otherwise noted, this report reflects our corporate sustainability performance across our global operations covering the fiscal year period from January 1 to December 31, 2023. To demonstrate our commitment to transparent communication regarding our sustainability progress, we routinely share updates through our website and our annual Sustainability Report. We welcome your questions, comments, and feedback on this report by contacting ESG@GoDaddy.com.

This report references the Global Reporting Initiative (GRI) Standards and includes select Sustainability Accounting Standards Board (SASB) metrics for the Internet Media and Services sector. We also disclose our contributions and progress toward priority UN SDGs. For additional information on how we align with these frameworks and key indicators demonstrating our sustainability performance, please review the Frameworks and Metrics section.

Originally published on Illumina News Center

This year may be the most impactful yet in the short history of iHope China. In Changsha, Hunan Province, the program’s leaders recently announced plans to deepen its impact by increasing reagent donations and expanding its coverage area.

Since its inception in 2022, iHope China has embodied its namesake for families dealing with rare genetic diseases. The program was established by the Special Fund for Diagnosis and Treatment of Genetic Diseases under the March of Dimes Birth Defects Foundation of China, and it receives support from the Illumina Corporate Foundation and Give2Asia.

In collaboration with key hospitals across the country, iHope China has made significant strides. It provides free genetic testing to families with rare disease patients and offers systematic training in genetic disease diagnosis to front-line clinicians nationwide. By mid-May 2024, the program had helped 513 families in collaboration with seven hospitals, ensuring valuable treatment opportunities for many children.

Addressing the issue of limited access to timely health care for grassroots patients in remote areas, the program has also implemented volunteer clinics at participating hospitals.

iHope China’s reach promises to be extensive in 2024, covering 13 provinces and cities in China. By the end of the year, the program aims to support 1800 families with rare diseases through genetic testing and during the kick-off event, more than 200 clinicians joined the offline genetic counseling workshop. This training includes guidance on the entire diagnostic process, from technology selection to report interpretation.

Early screening and diagnosis of rare disease are critical for improving patients’ prognoses. Professor Wu Lingqian, director of the Department of Genetics in the School of Life Sciences at Central South University in Changsha, says, “The level of awareness of rare diseases among front-line clinicians is crucial to the ultimate benefit of tens of millions of rare disease families in China. The program’s expansion and increased medical education efforts mean more patients will benefit from an enhanced rare disease prevention and treatment system.”

Xue Jingjie, secretary general of the March of Dimes Birth Defects Foundation of China, notes the program’s role in enhancing early diagnosis, providing timely treatment, and supporting families both psychologically and financially. “With the support of strong national policies, medical advancements, and broad public opinion, the early diagnosis rate of rare diseases in China is improving. The iHope China program has been dedicated to educating patients and their families about rare diseases and providing comprehensive support,” Xue says.

According to a study published in the European Journal of Human Genetics, 71.9% of known rare diseases are caused by genetic variations, and nearly 70% manifest in childhood.1 Over the past decade, whole genome sequencing has become increasingly vital for enabling timely and accurate diagnosis of genetic disease, and increasing treatment time for children with rare diseases.

“At Illumina, we are dedicated to accelerating access to genomics to achieve health equity for billions worldwide,” remarks Sharon Vidal, global lead of Corporate Social Responsibility at Illumina. “Expanding the reach of genetic testing enables families and communities to benefit from next-generation sequencing. To ensure treatments are effective across diverse populations, we strive for equitable representation in genomic data. This effort helps reduce biases and improves medical outcomes for a broader range of patients.”

Jenny Zheng, Illumina senior vice president and general manager of the Greater China region, adds, “The iHope China program reflects our commitment to expanding genomics accessibility and reducing the burden of disease on patients. In China, we uphold the spirit of ‘genomics for good,’ driving public welfare through technological innovation and collaboration with partners. Our goal is to expand hope for more families with rare diseases through science and care.”

Guided by the mission of contributing to China’s goals for preventing disease, the program will continue to bolster clinical acumen in diagnosing and treating rare diseases. It will also harness the collaborative strengths of philanthropic organizations, medical institutions, and enterprises, thereby amplifying public awareness and fostering societal advocacy for rare diseases.

For more information about iHope China or to inquire about applying, please contact ihope@csqx.org.cn.

1Nguengang Wakap S, Lambert DM, Olry A, et al. Estimating cumulative point prevalence of rare diseases: analysis of the Orphanet database. Eur J Hum Genet. 2020;28(2):165-173. doi:10.1038/s41431-019-0508-0

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