Avant Health and Rare Patient Voice Release Results From an International Survey Revealing Rare Disease Patient and Caregiver Perspectives on Burdens That Impact Their Lives

Three-fourths of rare disease patients and caregivers report that rare disease related economic burden impacted their family finances, and 27% report spending over 10,000 EUR/USD out of pocket to manage the rare disease. Majority report severe impact on family relationships. BETHESDA,…